Out of the box - Please read.

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Out of the box - Please read.

Postby Alzar » Fri May 03, 2013 7:55 pm

Hello All

This is completely different then you might be use to:

A dear friend of mine, long time player from Gamigo and more, needs all the help she and others in her situation can get.
Please reed the text on the link, do what you can, but remember... it could have been you or one that is dear to you.


Best regards
Tycoon

PS.

*Voornaam = First name
*Achternaam = Last name
*Plaats = City name
*Land = Country


Uw handtekening openbaar maken? = Do you want to show your name in the in public?
Click *Nee for No

Click the button under and look for email to verify. (Just close the new page that opens. It shows only options for the site and prices)
Last edited by Alzar on Sun May 05, 2013 5:35 pm, edited 1 time in total.
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Re: Out of the box - Please read.

Postby Tonyblack » Fri May 03, 2013 8:07 pm

Alzar, you're going to have to explain what this is about before anyone is likely to click the link.

I'm not being funny, but we hardly know you and you are asking us to trust you when you ask us to follow a link to a site in a language that most of us don't speak.

Tonyblack, Moderator
"Goodness is about what you do. Not what you pray to."
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Re: Out of the box - Please read.

Postby Alzar » Fri May 03, 2013 10:03 pm

Hey

Yes, sorry. The link goes to a Belgium site that works similar to https://petitions.whitehouse.gov/ in USA.
The petition last until Sunday. It is about people that are terminal sick diagnosed with PNH (Paroxysmal Nocturnal Haemoglobinuria.)

Thursday, the 7th of may 2013, The Minister of Public Health Onkelinx will decide if the medication, known as Soliris/Eculizumab, will be refunded or not, in Belgium. Please don't close your eyes for all PNH and aHUS patients! Support us by signing this petition. Do note that the end date is May 5th 2013.

I hope this explains a bit.

Best regards
Alzar
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Re: Out of the box - Please read.

Postby =Tamar » Sat May 04, 2013 4:09 am

Alzar wrote:The link goes to a Belgium site that works similar to https://petitions.whitehouse.gov/ in USA.
The petition last until Sunday. It is about people that are terminal sick diagnosed with PNH (Paroxysmal Nocturnal Haemoglobinuria.)

Thursday, the 7th of may 2013, The Minister of Public Health Onkelinx will decide if the medication, known as Soliris/Eculizumab, will be refunded or not, in Belgium. Please don't close your eyes for all PNH and aHUS patients! Support us by signing this petition. Do note that the end date is May 5th 2013.

Wikipedia says the usual treatment is a bone marrow transplant. If the medication involved is not covered (refunded), then the patient has to choose between owing a lot of money or dying. This kind of illness is not inherited; it is acquired, sometimes as a result of pernicious anemia and sometimes it just happens with no explanation. Thus, it could happen to anyone.
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Re: Out of the box - Please read.

Postby Alzar » Sat May 04, 2013 7:33 am

Hey

Yes, bone marrow transplant, is the cure.

Simply put: The medication, is for all that are waiting for the cure treatment, as there is not enough bone marrow donors and they do not match any of the bone marrow already in the banks all over the world.

Best regards
Alzar
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Re: Out of the box - Please read.

Postby Alzar » Sun May 05, 2013 5:39 pm

Hey all :)

Thank you all that have taken the time to looked here and maybe even followed the link and signed up for the petition :)

As Sunday is the last day, I removed the link and I would like to ask a Moderator to close this thread.

Thank you to all again :D

Best regards
Alzar
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Re: Out of the box - Please read.

Postby Tonyblack » Sun May 05, 2013 5:58 pm

Ok Alzar.
"Goodness is about what you do. Not what you pray to."
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