Alzar wrote:The link goes to a Belgium site that works similar to https://petitions.whitehouse.gov/ in USA.
The petition last until Sunday. It is about people that are terminal sick diagnosed with PNH (Paroxysmal Nocturnal Haemoglobinuria.)
Thursday, the 7th of may 2013, The Minister of Public Health Onkelinx will decide if the medication, known as Soliris/Eculizumab, will be refunded or not, in Belgium. Please don't close your eyes for all PNH and aHUS patients! Support us by signing this petition. Do note that the end date is May 5th 2013.
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